Shine Bright

*small disclaimer: this is a long post. I tried to condense it, but with over 500 pictures taken while on vacation, it was impossible to get it much smaller.

I have been struggling to write this post because this Christmas has meant so much to us. I'm afraid I won't be able to fully articulate how significant this year was. Last year was so full of hope and promise and dreams. Not only was I pregnant, but there was an anticipation of what was to come, and an open door of possibilities. Right after Maddie was born, I was afraid I had lost that, but I have so fully gained all of that back plus a newfound feeling of gratitude and appreciation. I knew Maddie would change our lives forever before she was born, just as her brother had done, but I had no idea how far she would stretch and push my heart to grow and love.

Which brings me to the title of this post and the title of our Christmas Card. Shine Bright. So much has happened this year, and this is what I'm taking from the whole crazy ride. Shine bright, embrace our differences, celebrate them, cherish them, and don't be afraid to be who you were born to be. I never thought that one tiny, dependent person would be the one to show me this in such a short amount of time, but she has. I want my babies to learn to shine bright throughout their lives, to never be afraid to be themselves and to know that they are fully accepted just the way they are.

On a side note, you should head on over to Kelle Hampton's blog, HERE, to see how she is helping others with Down syndrome to Shine Bright, as well. Donate if you can, or are moved to, she's not asking for much, whatever you can give, all the money raised goes to the National Down Syndrome Society (NDSS). She started with a goal of $15,000 and $5 donations from every state in the U.S. and beyond have put her above her goal 3 times already, and she's reaching for the stars! Her next goal is $63,000 (for the 3 sets of the 21st chromosome), but my guess is she's going to have to raise the bar again! And on a personal note, it has been amazing for me to feel this sense of community with everyone who has donated. I check the site multiple times a day to see how fast the donations are pouring in. It shows me how much good there is in this world, and that I don't have to be so afraid of the people who will not accept my daughter, because there are many, many more people who do understand and accept her than don't. I am thankful and grateful to Kelle for opening my eyes to this.

So, on with the rest of the post...

This year, for Christmas, we went to Florida with my Dad and Step-Mom, Barb, my brother, Austin, Grandpa Mac, and his girlfriend, Joanne. When we started talking about going, I quickly realized that it had been over 10 years since I spent an actual Christmas Day with this side of my family, and knew it had been too long.

Both kids did an amazing job on the plane ride. Aiden was happy to have some videos to watch, sit in the seat like a big boy and look out the window.  Maddie fell asleep during take-off and woke up 15 minutes before we landed. I don't think it could have gone more perfectly! Unfortunately for me, Maddie being asleep the whole time severely limited my mobility and I spent most of the 2 1/2 hour flight just holding her, and trying not to wake her up. However, both kids were happy, no one cried even a whimper, so I really have nothing to complain about.

Aiden was so excited to go to Florida. We talked for weeks about what Florida would be like and even watched some YouTube videos about manatees, dolphins, alligators and of course sharks (because the kid is OBSESSED with sharks) to prepare. So when Granddad picked us up from the airport, Aiden's natural first question, was about when and where we were going to see sharks. When he found out that we probably wouldn't be seeing any sharks he turned his attention to things we could do... like swimming.

Maddie was happy to stay inside and play with blocks... the water and weather were too cold for her.

For years my husband has not really cared about sports. It's one of the things I liked about him while we were dating. I didn't have to devote an entire day to watching football, we could go do other things together and enjoy our day. However, there is something about the Steelers that has drawn him in (ok, I have to admit, they've kinda drawn me in, too). You know that saying that people can't ever change? Yeah, well my husband is proving them wrong. He is so obsessed, in fact, that he had to find the game on the internet and watch it while we were gone.

When Tom and I were little and going to Florida with my Dad every other year for Christmas, it was tradition that the weather would turn bad and inevitably be "one of the coldest" periods that Florida had had in years. It never failed. It was as if the second our plane landed the weather would turn cold and as we were taking off to go home, the weather would warm up. Well, this year was really no different, but Aiden didn't let the cold stop him from pretending to swim.

And Maddie enjoyed reading books indoors with her Granddad.

We busily prepared for Christmas Eve and Christmas Day when we got down to Sanibel Island, wrapping presents, stopping by the grocery store, and making cookies. A note (that Aiden attempted to sign his name to), cookies for Santa, and carrots for the reindeer were left by the (brand new) fire place, but I just realized that we didn't leave any milk out... oops. I hope the Big Guy didn't hold it against us.

If you look closely, you can see his "A" and "i"

Christmas morning came quickly and I was so excited to see Aiden's face when he had seen that Santa came to visit. He's a bit shy and apprehensive, but had no problems warming up quickly. He was excited to see that Santa and the reindeer had eaten some of their treats, but couldn't figure out why he had left anything. *Note to self: Next year make sure Santa finishes cookies* But, he was excited that he could eat the leftovers, especially since it was the first thing he had had all morning to eat... cookies for breakfast, every 3 year old's dream come true!

Maddie was happy to just be held and look cute in her Christmas pj's. And, in case you can't tell, yes, her pj's have a little tutu on them... so stinking cute!!

Christmas morning love.

Aiden was done with the love and ready to open presents.

He was a good elf helper and passed out all the presents. I was happy that this was no longer my job.

Maddie and her new "Maddie the Mermaid" that Aiden gave to her as her Christmas gift. She loves her!

Grandpa Mac and Joanne, getting into the Christmas spirit!

Aiden enjoyed all of his gifts, which included a belt and wallet that he asked Santa for. However, apparently Aiden didn't specify what kind of wallet he wanted from Santa and instead of getting him a nice black leather wallet, like he envisioned, Santa got him one with a shark on it. Aiden's first reaction was, "No, not one like this! Like Daddy's wallet!" Santa... fail. However, since then Aiden has forgiven Santa, and now loves his wallet... whew!

While we were in Florida, Austin found himself with a nephew who didn't want to leave his side. Aiden followed Austin everywhere and wanted to do most of the things he was doing. Austin was such a great sport, and seemed to enjoy hanging out with Aiden as much as he did.

Here's just a sleeping baby who was too sweet not to take a picture of.

And then I regretted it, because it woke her up.

Mimi and Aiden taking a nap together. I don't think Aiden had to sleep by himself during a nap once while we were there! He was in heaven. Only now, he thinks every time he takes a nap, that someone has to sleep with him.

It also seemed that my husband found the right family for watching football with. One night we went to a bar that had a private section for only Colts fans! It was pretty amazing to be on this tiny island and have so many people come together as fans to watch the game.

One day we walked over to Periwinkle Park, which is a camp ground on the island that has a bird sanctuary in the middle of it. We were all excited to see the birds, but unfortunately, it was so cold they had to move the birds inside. Luckily, the woman who does the bird shows decided to show us some of the birds anyway. (Please note, we are all in our winter coats... it was pretty cold).

We also went to an outlet mall close to the Island and had a day to play while my Dad flew back to Indy for the day to work (crazy right?!?). Aiden followed Austin everywhere and just couldn't get enough of him!

We had never taken Aiden putt-putting before, but Dad and Barb knew of a place that we could go that had live alligators, and since this was one of the things we had talked to Aiden about before coming down, we knew we had to see them. And, the putt-putting was tons of fun!! Aiden had a blast!

Putt-putt is a lot harder when you're carrying a sleeping baby on your chest.

Out to dinner at a Jazz Club with the whole family. It was fun to get dressed up and do a little dancing. Aiden was in heaven and loved watching the band play with Granddad. There was even a trombone player who came down and played right in front of him very quietly while he sat on Granddad's lap. He was amazed, to say the least! Maddie had a good time, too, being held by Mimi and admired by other people dinning in the restaurant. Then she fell asleep in my arms and was content the rest of the evening. I love that she's still in that stage, where she can fall asleep and be content in my arms despite whatever else is going on. It's the most comforting feeling for me, and I can't even imagine what it feels like for her.

Granddad and Aiden playing one of Aiden's favorite games after getting out of the tub, "Wanna 'mell 'em?!?" Granddad played along, however I'm not sure he had just gotten out of the tub!

On our last day there, we were scrambling to fit things in. There were so many things left and we wanted to make sure we squeezed them all in before leaving. So in the morning Aiden and Granddad went fishing, then we rode bikes to the beach, because you can't go to Florida without going to the beach, rode home and spent the rest of the night packing up to go home. Unfortunately, Mimi wasn't feeling so well and she spent the rest of the night in bed trying not to infect us all with her cold.

Unfortunately, the day after we got home, New Years Eve, Aiden, Maddie, and I were all sick.  We spent New Years Eve in the E.R. with both kids, since the doctor's office was closed for the next 2 days. Aiden ended up having a double ear infection and an Upper Respiratory Infection, Maddie an eye infection, and later developed into a pretty nasty Upper Respiratory Infection, and I got a little bit of everything. Grant worked New Years Eve and so our celebration of the New Year didn't happen until New Years Day. We didn't do much, but did have some yummy fondue!

This year has been so full of life and love. I have stretched myself further than I could have ever imagined, but what I am taking away from it, I will forever be grateful for. I can't wait to see all the things that these two little beings will show me, and how they will challenge me to Shine Bright in the next year. It was a great way to celebrate Christmas and the end of an amazing, challenging, fulfilling, year!

Paying it Forward

As we are getting ready to celebrate Maddie's 1st birthday, Kelle Hampton is getting ready to celebrate her daughter Nella's as well. See how Kelle and Nella are paying it forward for those with Down syndrome, and see how you can help by clicking HERE! (Also, check out our friend Colton, who's picture is among all the cuties in the post!)

It's the Most Wonderful Time of the Year

The last few days weeks have been a blur of activity. We've seemingly gone from one activity to another. Here are some of the pictures from the last few weeks...

Making cookies:

Attempting to stand and cheering for herself:

Aiden wanted to make a magic wand for our friend who babysits him. He came up with the idea all by himself. Luckily, I found this great kit after he said that he wanted to make her a magic wand. He also colored her a picture and told me what to write to her. The best part is how he sticks out his tongue when he's concentrating:

Maddie just being cute. Notice the monkey she has in her mouth, she has chosen him to be her "lovey". You should see the way she lights up when we put him down with her... so cute!

Maddie's graduated from the baby bathtub to the sink, and it's really cute!!

Grant's sister, Laura, made this apron for Aiden for Christmas. We opened it before we left for Florida, and he loves it!! In case you can't read it, it says "Aiden's Cafe" on top and then his tag-line he came up with for his little restaurant, "I believe you'll like it!" down below. In this picture he was talking to me like I was recording him and said, "Today we're going to make cupcakes," like he was the host of a show on the Food Network. The kid cracks me up!

Ok, so I condensed some of the posts and just have one big Christmas week post left and then I should be caught up with the blog! Yay!!

Impromptu Day

Most Fridays are busy days here. Aiden doesn't have school Friday mornings and Maddie usually has two appointments, Developmental Therapy in the morning and Speech Therapy in the afternoon. So when both our appointments got cancelled, we had a free day to do anything we wanted.

I was so happy because Aiden had been asking to go to the Children's Museum for quite some time and this was the perfect opportunity.

We gassed up the car and headed out...

Ha ha! Not really, but Aiden did get to gas up a smart car at the museum.

Maddie even enjoyed the infant room at the museum, but Aiden was antsy to get to the water room.

Aiden spent the majority of his time in the water room and the craft room. He loves painting and usually has to make a few paintings before we leave. He was also able to make paper this time, and enjoyed it so much that he did it twice in a row before moving on to something else.

The museum has this huge two story wall that the kids can climb through. It's usually crawling with kids and so busy that it looks like a beehive. Aiden is usually too cautious to go through it for this reason, but at the end of the day no one was in it and he was brave enough to give it a try. He LOVED it!

 We were all tuckered out at the end of the day, but had a great time! I LOVE impromptu days, they are the best. These are the days that fill my heart and keep me going and they are the days that will stick in my head and forever! The smile on Aiden's face was priceless and I would do just about anything to have him look at me like that everyday!